November 2019, Matt Hancock, former United Kingdom health secretary, he revealed a desire for exaltation: following the instincts of every child in the world. It could lead to “racial change,” he said, and the future would be “predictable, preventative, health care.”
Hancock’s dream is coming true. In October, the government he announced that Genomics England, a state-owned company, will receive funding to conduct research in the UK which aims to track the genomes of children between 100,000 and 200,000. Called the Newborn Genomes Program, the program will be integrated into the National Health Service in the UK and will look at “genetic” genetics – meaning those with treatment or means available – as well as those that appear in childhood, such as pyridoxine – epileptic and congenital adrenal hyperplasia.
It has taken 18 months to start recruiting, says Simon Wilde, director of the Genomics England. The program does not meet Hancock’s goal of integrating “every child”; during the experiment, parents will be enrolled to participate. The results will be returned to parents “as soon as possible,” says Wilde. “Most of the rare diseases that we will be looking at, once you start intervening with treatment or care, then the long-term consequences for the baby will be much better.”
The children’s genomes will also be identified and added to the National Genomic Research Library in the UK, where data can be collected by researchers and medical companies to study, with a view to developing new drugs and diseases. The researcher’s goal, according to Genomics England, is to increase the number of genetic diseases that are diagnosed at an early age in order to explore new therapies, and to explore the potential of human genetics as part of their medical history can be used later in life. .
Following all genomes, creating a 3 billion map that generates genetic code, can bring back insight into your life. By comparing genomes with museums, scientists are able to identify a wide variety of genes, which are related to other diseases. As the cost of genome sequencing has skyrocketed (now it only costs a few hundred dollars and can bring results in less than a day), its promises to change health care have become more enticing – and morally degrading. Disclosing vast amounts of genetic information from millions of people needs to protect it from abuse. But proponents say that genetic mutations in babies are possible help to understand a rare disease in the past, to have better health in the future, and to improve all aspects of the genes.
Back in 2019, Hancock’s words left a bad taste in Josephine Johnston’s mouth. “It sounded like nonsense, as he said,” says Johnston, chief research officer at the Hastings Center, a bioethics research institute in New York, and a visiting researcher at the University of Otago in New Zealand. “It had this other policy, which is not about health – it is a policy that is clearly superior to technology, thus winning some kind of competition.”